Brain Tumour Alliance Australia
Founded in 2008, this Australian volunteer-run organization provides support and advocacy for brain tumour patients, their carers, and families, emphasizing research, treatment improvements, and public policy involvement.
Mawson, ACT (view contact and location information)
ABN: 97733801179
Founded on ,
registered as a charity on the
ACNC Charity Register
since .
How This Charity Supports the Community
Brain Tumour Alliance Australia (BTAA) was established in 2008 and operates as a volunteer-driven organisation. BTAA aspires to serve as the national voice for brain tumour support in Australia, focusing on the needs of patients, their carers, and the often-overlooked families. This non-profit organisation supports individuals with any brain tumour affecting the central nervous system, including the brain, meninges, and spinal cord. They provide support for paediatric and adult tumours, both malignant and benign, and metastatic brain tumours. BTAA is of the opinion that brain tumours are a neglected illness requiring a unique response and increased community and government-backed research efforts.
Mission and Vision
BTAA’s mission is to deliver peer support to individuals living with a brain tumour and extend this support to their carers, families, and friends. They aim to ensure treatment options align with the best available evidence and to advocate for improved care and access to therapies. Their vision is to increase awareness about public policy issues affecting the brain tumour community, especially since brain tumours rank as a leading cause of cancer-related mortality in children and young adults in Australia.
Main Objectives
BTAA seeks to support the professional development of health care professionals with an interest in brain tumours. They advocate for better brain tumour research, treatment, and care. Additionally, BTAA makes recommendations to the government regarding brain tumour policy and advocates for access to specially trained care coordinators to act as patient advocates.
Benefiting Groups
BTAA supports patients diagnosed with any type of brain tumour, their carers, families, and friends. The organisation also engages with health professionals and academics interested in brain tumours.
Services and Activities
BTAA operates a support line for peer-to-peer support and provides information and referrals to appropriate support services. They collaborate with the International Brain Tumour Alliance and participate in events like the International Brain Tumour Awareness Week and the annual Walk Around the World for Brain Tumours. Although they choose not to focus on fundraising, they encourage donations to support their role in advocacy and patient support.
Communities and Groups They Support
Explore the Work of Brain Tumour Alliance Australia Through Images and Stories
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