Racing for MNDi Foundation

Racing for MNDi is a dedicated foundation committed to accelerating the search for effective treatments and ultimately a cure for Motor Neurone Disease (MND). This devastating neurodegenerative condition progressively destroys the body’s ability to control movement, leading to severe disability and death, often within a few years of diagnosis. Racing for MNDi focuses exclusively on funding genetic-based research, recognising that understanding the genetic mutations involved in MND is key to developing targeted therapies that can change lives.

Mission and Vision

The mission of Racing for MNDi is to supercharge the search for a cure by funding the most promising genetic research projects that can rapidly translate into clinical benefits. Their vision is a world without MND, achieved sooner through collaboration and innovation in research.

Main Objectives

• Fund genetic research that targets the underlying causes of all forms of MND, including rare inherited mutations.
• Accelerate development of RNA therapeutics and other molecular treatments that directly address motor neuron disruption.
• Promote collaboration among researchers, clinicians, and industry to share knowledge and resources openly.
• Raise awareness about the urgent need for more focused investment in MND genetic research.

Benefiting Groups

• People living with MND and their families, who currently face limited treatment options and a poor prognosis.
• Researchers and clinicians specialising in neurodegenerative diseases, who gain support to pursue innovative genetic studies.
• The broader medical community, through advancements in understanding and treating MND.

Services and Activities

• Funding multi-institutional research partnerships, such as the Murdoch MND Research Partnership, focused on genetic mechanisms and therapeutic development.
• Supporting projects that develop targeted molecular therapies, including RNA-based treatments.
• Facilitating open access to research findings to speed up progress across the global MND research community.
• Engaging the public and stakeholders through awareness campaigns and fundraising initiatives to sustain and grow research efforts.