Rett Syndrome Association Of Australia Incorporated
View contact informationEstablished in 1989, this Melbourne-based nonprofit supports individuals with a genetic disorder affecting brain development. Run by volunteers, it offers updates, stories, and ways to contribute to the community.
Grovedale, VIC
ABN: 55128238122
Founded on ,
registered as a charity on the
ACNC Charity Register
since .
How This Charity Supports the Community
The Rett Syndrome Association of Australia Incorporated (RSAA) is a not-for-profit organisation established in Melbourne in 1989. It is managed by a committee of volunteers, primarily parents and carers of children with Rett syndrome. The association is dedicated to supporting individuals affected by Rett syndrome and their families, aiming to improve their quality of life through various forms of assistance and advocacy.
Mission and Vision
The RSAA’s mission is to enhance the quality of life for persons with Rett syndrome and to provide support to their families and carers. The association envisions a community where those affected by Rett syndrome receive comprehensive care, understanding, and opportunities to connect with others facing similar challenges.
Main Objectives
- Support families: Offering direct communication, accurate information, and opportunities for families to meet and share experiences.
- Information sharing: Collecting and disseminating up-to-date knowledge about Rett syndrome through newsletters, social media, and educational materials.
- Research assistance: Providing financial and organisational support to Australian studies focused on Rett syndrome.
- Community awareness: Promoting understanding of Rett syndrome through media, talks, and participation in awareness events, especially during Rett Syndrome Awareness Month in October.
- Organising gatherings and conferences: Facilitating family meet-ups and national conferences to foster community and share the latest research and care strategies.
- International liaison: Maintaining connections with Rett syndrome associations worldwide to exchange knowledge and resources.
Benefiting Groups
The primary beneficiaries of RSAA’s work are individuals with Rett syndrome, their parents, siblings, grandparents, and carers. The association also supports healthcare professionals and researchers involved in Rett syndrome care and study.
Services and Activities
- Providing a network of support through direct contact, newsletters, and online platforms.
- Hosting family gatherings and national conferences to share experiences and knowledge.
- Distributing educational resources such as DVDs and videos from symposiums and conferences.
- Offering financial assistance to research projects in Australia focused on Rett syndrome.
- Raising public awareness through media campaigns, presentations, and participation in local and international conferences.
- Managing volunteer involvement from family members and carers to sustain the association’s activities.
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Communities and Groups They Support
Support Rett Syndrome Association Of Australia Incorporated Through Donations
Support the charity’s vital work by making a donation. Every contribution helps them continue their mission.
Their official Australian Business Number (ABN) is 55128238122 for your reference.
See FAQs about donating to Rett Syndrome Association Of Australia Incorporated:
How can I make a donation to Rett Syndrome Association of Australia?
Donations can be made through various methods including cheque, EFT, Postal Order, credit card, or PayPal. For more information, visit their website or contact them via email at info@rettaustralia.org.au.
Can I set up a monthly donation?
Yes, you can set up a monthly donation. Please refer to their payment options on their website for more details.
Is it possible to donate in memory or in celebration of someone?
Yes, you can choose to honour someone with your donation either in memory or in celebration. You can specify this option during the donation process.
Will someone be notified of the donation I make in their honour?
Yes, you can opt for someone to be notified of your donation by providing their email address during the donation process.
What payment options are available for making a donation?
You can make a donation using credit card or PayPal. After submitting your information, you will be directed to the PayPal website to complete your transaction.
Can I subscribe to a newsletter from Rett Syndrome Association of Australia?
Yes, you can subscribe to their newsletter. There is an option to do so when you provide your email during the donation process.
How can I contact Rett Syndrome Association of Australia for more information?
You can contact Rett Syndrome Association of Australia via email at info@rettaustralia.org.au for more information.
Hands-On Volunteer Opportunities at RSAA: Make a Meaningful Impact Today!
Volunteering at the Rett Syndrome Association of Australia (RSAA) can be a profoundly fulfilling experience. Consider the story of Barry, a retiree whose granddaughter was diagnosed with Rett syndrome. Initially assisting through donations, he later used his extensive experience in operations management to volunteer with the RSAA. Such involvement allowed Barry to develop hands-on skills and significantly contribute to the association’s goals.
With his expertise, Barry supported the RSAA’s website review project, relieving the President and ensuring successful outcomes. This illustrates how volunteering offers opportunities for personal growth and satisfaction while supporting a noble cause close to one’s heart.
The RSAA welcomes volunteers with diverse skills, such as fundraising, seminar management, and website administration. By dedicating a few hours of your time, you can significantly impact the charity’s mission. If interested, potential volunteers are encouraged to get in touch with the RSAA via their website’s contact form.
Visit Rett Syndrome Association Of Australia Incorporated’s official website to explore volunteering opportunities and how you can get involved.
Get in touch with this charity for details, support or collaboration.
74 Peter St
Grovedale VIC 3216
Australia
Source of information and last update date:
The information on this profile has been sourced from the ACNC Registered Charities dataset and the organisation’s own website.
The last review was completed on
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