Scleroderma Association Of Queensland Inc.
A not-for-profit organization offering support, friendship, and education for those affected by a rare autoimmune disease. They promote awareness, fund research, and collaborate with Rare Voices Australia to advocate for change.
Maleny, QLD (view contact and location information)
ABN: 91905099795
Founded on ,
registered as a charity on the
ACNC Charity Register
since .
How This Charity Supports the Community
The Scleroderma Association of Queensland Inc. is a not-for-profit organisation dedicated to supporting individuals affected by scleroderma, as well as their families and friends. The association aims to create a community where collaboration, support, and understanding are fostered to improve the lives of those impacted by this rare autoimmune disease.
Mission and Vision
The association’s mission is to provide support, friendship, and education to people affected by scleroderma, along with raising awareness and advocating for increased research funding. Its vision is ambitiously focused on working towards a world free of scleroderma and Raynaud’s phenomenon. By aligning with organisations like Rare Voices Australia, they strive to amplify their impact on a broader platform.
Main Objectives
The main objectives of the Scleroderma Association of Queensland are to educate patients and their families about the complexities of scleroderma, support ongoing research, and increase public and medical awareness of the disease. They focus on connecting individuals with resources and community networks to foster a comprehensive support system.
Benefiting Groups
The primary beneficiaries are individuals living with scleroderma, as well as their families and caregivers. The association also extends its support to healthcare professionals and researchers who are engaged in scleroderma studies. By sharing experiences and stories, the community collectively benefits by addressing both the physical and emotional challenges posed by the disease.
Types of Services or Activities
The association offers a range of services, including educational resources, patient support networks, and advocacy for research funding. One of its notable services is the Scleroderma Pathways Telehealth Nurse program, which provides access to a trained registered nurse with expertise in scleroderma to help patients navigate the Australian healthcare system. This service ensures that individuals, regardless of their location, receive consistent and informed guidance tailored to their needs.
Communities and Groups They Support
Explore the Work of Scleroderma Association Of Queensland Inc. Through Images and Stories
Discover how Scleroderma Association Of Queensland Inc. creates safer communities through their work. Visit their social media channels to follow their daily efforts, updates, and inspiring stories making a real impact.